Building capable communities to tackle premature avoidable death in people with a learning disability living with epilepsy

There is now a recognised urgent and compelling case for action to tackle premature avoidable death and to improve quality of life for people with learning disability who live with epilepsy. Almost a quarter of people with a learning disability have epilepsy. This life-long condition adversely affects their health, safety and well-being and carries a significant increased risk of sudden unexpected death in epilepsy (SUDEP).

Join Professor Rohit Shankar, Epilepsy Action and other leading experts at our forthcoming webinar to learn more about how a whole system approach to creating capable communities can help address the challenges we continue to face in reducing avoidable premature death for this at risk population. 

What can I expect from this webinar?

• Gain insights from families who will share their stories and shed light on the necessary changes needed 
• Insight from new research on risk factors for death in people with a learning disability living with epilepsy. 
• The case for why a whole-system approach to developing capable communities is needed to tackle premature death and how this can be realised drawing on the experience of Lincolnshire ICS and wider Midlands region.
• Showcase of the innovative Step Together Benchmarking Tool developed by Epilepsy Action to support health and care systems appraise the effectiveness of epilepsy services and support for people with a learning disability. 
• An opportunity to network and share information and good practice.
• A tested approach to tackling health inequalities for people with a learning disability.
• Access to useful materials and resources to support improvement.

Who should attend this webinar?

This event is open interested in improving outcomes for people with a learning disability living with epilepsy, but will be of particular interest to: 

• Health and social care commissioners of learning disability, autism and epilepsy services
• Clinicians and practitioners supporting children and adults with a learning disability, autism, or both 
• Psychiatrists
• Neurologists/ Epilepsy specialists 
• Epilepsy Specialist Nurses
• GPs & Primary Care leads 
• Primary Care Liaison Leads
• Community Learning Disability Teams 
• Specialist hospital and community providers supporting people with a learning disability 
• Community and voluntary sector organisations

How to book?

You can book you place by visiting clicking on the button below.

For any queries please contact Hafsha Ali at Hafsha.ali1@nhs.net 

Transforming Care series

This event is part of series hosted by NHS Midlands and Lancashire (ML) specialist team supporting the transformation of learning disability, autism and specialised mental health care.

The webinar series brings together experts from across the sector to target pressing issues that health and care partners face in learning disability, autism and specialised mental health care transformation. Future sessions will focus on capacity and capability of the care provider market, care quality in specialist hospital provision and how we enable citizen voice to improve safety.

For more information about this event, or to join our mailing list for future events, please email Hafsha Ali at hafsha.ali1@nhs.net.